In our house, fall means changing leaves, homemade Halloween costumes, and a little nail-biting fear. Respiratory season is upon us, and that always adds an element of dread for families of kids who are medically complex.
At two months old, my son Richie received his trach, and he was ventilator dependent until he was 18 months old. Gradually, he was able to tolerate a speaking valve and capping, all working toward decannulation. It seemed to us that things would be easier once he no longer had a trach, but it isn’t quite that simple. Continue reading
The following was published as part of my “Teachable Moments” blog series for ProMedica HealthConnect. We humans are naturally social creatures. We gather, embrace and share. Unfortunately, we often share our germs. Germs are everywhere, and as a result, the parents of medically fragile children often limit their children’s interactions and essentially self-quarantine. Continue reading
When we met 1275 days ago, it was on one of the worst days of my life. Continue reading
This article was published in Complex Child e-magazine‘s annual respiratory issue. The moment the doctor told me Richie would need a tracheostomy, I felt the floor drop from beneath me. Just one week earlier, we had brought our 11-week-old baby to the emergency room because he was wheezing. Born with fiber-type disproportion myopathy, he had severe … Continue reading