No hospital is error-free. The most important partner in your child’s health and safety is you. You can help keep your child safer by sharing information and asking questions.
At two months old, my son Richie received his trach, and he was ventilator dependent until he was 18 months old. Gradually, he was able to tolerate a speaking valve and capping, all working toward decannulation. It seemed to us that things would be easier once he no longer had a trach, but it isn’t quite that simple.
Both parenting and advocacy focus on creating the best possible future: for our children to thrive and to be accepted and understood. It can be a heavy load, and it’s easy to mix up which role we need and when.
When we met 1275 days ago, it was on one of the worst days of my life.
The following was published as part of my “Teachable Moments” blog series for ProMedica HealthConnect. As the parent of a medically complex child, taking care of myself has included the need to power up in regular intervals. Richie’s first year of life was marked with hospitalizations, tests, and the slow achievement of milestones. For me, …
As a caregiver, I feel most empowered when I am informed enough to do more. Learning and sharing have become essential to my role as a caregiver. Finding out what works best is most effective when I can crowdsource helpful tips, reviews and advice from others who have walked this path.
Looking back, the decision to check the “yes” box for Early Intervention was one of the most important decisions I have made as a parent.